Quiver : The Health Blog

Navigating Epilepsy: Beyond the Pill

Posted on 19-Jun-2024
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Living with epilepsy can be challenging, but with the right strategies and support, you can lead a fulfilling life. In this post, we'll discuss important tips on managing epilepsy. Epilepsy is a non-communicable disease like diabetes or hypertension which requires long term treatment; stop feeling insecure and take your disease into your own control by taking The medication regularly. It may cause social, economic and emotional distress if uncontrolled. There are several aspects to handle if you are an epileptic to avoid further seizures. 

1. Medication Adherence

    • - Drug adherence is one of the key measures to prevent seizures.
    • - Take medicine at the right dose, right time and regularly as prescribed by your doctor.
    • - Do not delay the dose by more than one hour.
    • - A single missed dose can precipitate a seizure.
    • - Ask your doctor before reducing or stopping medicines.
    • - Keep medicines with you always, even during travel.
    • - Refill your medicines before they get exhausted.
    • - Patients with memory problems or psychological problems need support from family members to adhere with treatment.
    • - There are many types of medicines for epilepsy; if you are not able to buy a costly medicine, don’t worry; your doctor might be able to give a cheaper, but effective medicine.
    • - It might take some time to find optimal dose and number of medications to control your epilepsy; so don’t lose hope and continue taking medicines as prescribed by your doctor.
    • - Many medicines used for epilepsy have interactions with other medicines and side effects; tell your doctor about other medicines and side effects that you are experiencing to optimize your medication.
    • - You should continue the medication even if you fall sick for another reason like fever or cold.
    • - If you have an episode of vomiting within ten minutes of talking medication or if you can see the entire medicine in the vomit, you can repeat the dose.
    • - You should not stop the drug just because you feel better or you don’t get seizures for some time
    • - You should not stop drug even when you are on fasting for religious or other purpose.

     

    If drugs are taken regularly at the optimal dose and combination, there is good chance that your epilepsy will be under control and you will be able to lead a happy and productive life.

2. Stress Management

  • Identify and Avoid Triggers: Keep a journal to track what triggers your seizures and try to avoid these situations or prepare for them in advance.
  • Practice Relaxation Techniques: Incorporate stress-reducing activities like meditation, yoga, deep breathing exercises, or mindfulness into your daily routine.
  • Stay Connected: Talk to friends, family, or support groups to share your feelings and reduce stress through social support.

3. Sleep Hygiene

  • Maintain a Consistent Sleep Schedule: Go to bed and wake up at the same time every day to regulate your sleep pattern.
  • Create a Relaxing Sleep Environment: Ensure your bedroom is conducive to sleep—cool, dark, and quiet.
  • Limit Caffeine and Screen Time: Avoid caffeine and reduce screen time before bed to help improve sleep quality.

4. Healthy Lifestyle

  • Balanced Diet: Eat a well-balanced diet rich in fruits, vegetables, whole grains, and lean proteins. Proper nutrition can help manage epilepsy and overall health. Avoid alcohol and smoking 
  • Regular Exercise: Engage in regular physical activity that you enjoy. Exercise can improve mood, reduce stress, and enhance overall well-being. However, consult with your doctor to determine safe activities for you.
  • Stay Hydrated: Drink plenty of water throughout the day to stay hydrated, as dehydration can sometimes trigger seizures.

5. Safety Measures

  • Seizure Safety Plan: Develop a safety plan with your healthcare provider and loved ones. This may include what to do during a seizure and how to keep yourself safe.
  • Wear Medical ID: Consider wearing a medical ID bracelet or carrying a medical ID card that indicates you have epilepsy. This can be helpful in case of an emergency.
  • Seizure-Proof Your Home: Make modifications to your home to reduce the risk of injury during a seizure, such as using padded furniture edges and installing grab bars in the bathroom.

6. Education and Advocacy

  • Learn About Epilepsy: Educate yourself about your condition, treatment options, and management strategies. Knowledge is empowering.
  • Advocate for Yourself: Be an active participant in your healthcare. Ask questions, express your concerns, and work with your healthcare team to create a personalized management plan.
  • Raise Awareness: Share your experiences to help raise awareness about epilepsy and reduce stigma.

7. Emotional Well-being

  • Counseling and Support Groups: Seek counseling or join support groups to help cope with the emotional aspects of living with epilepsy. Sharing experiences with others who understand can be very comforting.
  • Positive Attitude: Focus on the positive aspects of your life and the things you can control. Practice gratitude and engage in activities that bring you joy and fulfillment.

Remember, every person's experience with epilepsy is unique. What works for one person may not work for another. It's important to find the strategies that work best for you and to maintain open communication with your healthcare team.